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Changing a Mic-key G-button Posted by: MotherWhimsey
Video duration: 84 seconds Changing a mic-key G-button. Related: button, change, feed, feeding, g-button, g-tube, gastrostomy, mic-key, tube, tubefeed, tubefeeding |
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Linden Posted by: MotherWhimsey
Video duration: 253 seconds Just a bunch of pictures of Linden's life so far. He has mitochondrial disease complex III deficiency. Related: baby, feeding, g-tube, mda, montage, neuromuscular, tube |
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Blended tube feeding diet Posted by: MotherWhimsey
Video duration: 176 seconds We blend whole foods for our son's tube feeding diet instead of just giving formula. Here's how we make the food. Related: blended, feeding, g-tube, gastrostomy, puree, tube, vitamix |
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another g-button change with a nice stoma shot Posted by: MotherWhimsey
Video duration: 51 seconds a quick g-button change with a good look at his stoma. Related: button, change, feed, feeding, g-tube, mic-key, stoma, tube, tubefeed, tubefeeding |
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bi-phasic inspiratory stridor Posted by: MotherWhimsey
Video duration: 42 seconds This is a great example of bi-phasic inspiratory stridor. My son was born with a few congenital airway anomalies, one of which is called Laryngomalacia. That is what causes the noise. He has been diagnosed with Mitochondrial disease complex III deficiency. Related: bi-phasic, breathing, complex, iii, infant, inspiratory, laryngomalacia, mitochondrial, stridor |
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repiratory distress Posted by: MotherWhimsey
Video duration: 31 seconds Here he is in respiratory distress (in the hospital) due in part to the Laryngomalacia.supra glottoplasty. Related: distress, laryngomalacia, respiratory, stridor |
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Trip to the aquarium Posted by: MotherWhimsey
Video duration: 607 seconds Here are all our pics of our trip to the aquarium, the good the bad and unedited. Related: aquarium |
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Mitochondrial Disease Awareness Montage Posted by: MotherWhimsey
Video duration: 339 seconds Please visit www.MitoAction.org and www.UMDF.org for more information on mitochondrial disease. please help us find a cure. Related: disease, g-tube, mito, mitoaction, mitochondrial, needs, oxygen, son, special, umdf |
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stridor Posted by: MotherWhimsey
Video duration: 36 seconds Linden's having problems, just thought I'd record his breathing. Related: stridor |
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New Masimo, small desat Posted by: MotherWhimsey
Video duration: 111 seconds Just a look at our cool new pulse ox. It is really amazing. And I figured I'd tape a little mini desat just cause looking at a video when all it does is say 100 is boring. Related: desat, masimo, ox, pulse |
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Breathing post-supraglottoplasty Posted by: MotherWhimsey
Video duration: 43 seconds Here's his breathing now while sleeping, four months after the supraglottoplasty. Our surgeon did an amazing job, and this is all the noise there is left unless the laryngomalacia is exacerbated by something else. Related: laryngomalacia, mild, post-operative, stridor |
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Chest PT vest Posted by: MotherWhimsey
Video duration: 19 seconds Having fun making noises in the PT vest. Related: chest, cough, lung, pt, vest |
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Baby Boogie Posted by: MotherWhimsey
Video duration: 31 seconds Loving the music. Related: baby, boogie, music |
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Levitating balls with the cough assist Posted by: MotherWhimsey
Video duration: 87 seconds Using the cough assist isn't very fun, so when we're finished we like to have a little fun with it so that it's not so scary. Related: assist, balls, cough, ping, pong |
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possessed pulse ox Posted by: MotherWhimsey
Video duration: 37 seconds our pulse ox has gone crazy a few times. Related: masimo, ox, pulse |
