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Spinal Muscular Atrophy-CPT Sessiono Part 1 Spinal Muscular Atrophy-CPT Sessiono Part 1
Posted by: Shira2

Video duration: 555 seconds

Please consult with your doctor, physio therapist and respiratory therapist to devise a Chest Physio Therapy Routine designed specifically for your child. CPT is administered minimum 2 times and day and increase to every 4 hours during illness

Related: 1, atrophy, chest, muscular, physio, sma, spinal, therapy, type

Spinal Muscular Atrophy - In Memory of Lily 6th Bday Spinal Muscular Atrophy - In Memory of Lily 6th Bday
Posted by: Shira2

Video duration: 389 seconds

This video is posted today in Memory of Beautiful Princess Lily who died yesterday following a 7 year battle with SMA. We love you Lily! You and your mommy have a special place in our hearts.

Related: atrophy, barnett, lily, muscular, sma, spinal

Spinal Muscular Atrophy - Shira Sitting Up Spinal Muscular Atrophy - Shira Sitting Up
Posted by: Shira2

Video duration: 284 seconds

Shira sitting in Tumble Form Chair with Hensinger Neck brace. The frame around Shira is multi-purpose

Related: atrophy, fisher, muscular, shira, sma, spinal

Spinal Muscular Atrophy - Mickey Button Change Out Spinal Muscular Atrophy - Mickey Button Change Out
Posted by: Shira2

Video duration: 493 seconds

Here is a video showing how to remove and replace your childs Mickey Button. Please consult with your physician before trying this at home

Related: -, atrophy, button, change, michey, muscular, out, sma-, spinal

Spinal Muscular Atrophy- CPT Session Part 2 Cough Assist Spinal Muscular Atrophy- CPT Session Part 2 Cough Assist
Posted by: Shira2

Video duration: 206 seconds

Shira receiving a cough assist treatment. Please consult your doctor, respiratory therapist and physio therapist to devise the appropriate Chest Physio Session for your child. Shira receives the cough assist treatment 2 times per day and up to every 4 hours if ill. I use the cough assist throughout the day as Shira needs it. The cough assist is our friend!

Related: assist, atrophy, chest, cough, cpt, muscular, physio, sma, spinal, therapy

Spinal Muscular Atrophy -SMA/In Loving Memory of Lily Spinal Muscular Atrophy -SMA/In Loving Memory of Lily
Posted by: Shira2

Video duration: 236 seconds

Lily Barnett lost her fight against Spinal Muscular Atrophy Type 1 on May 12, 2008 just short of her 7th birthday. We will never forget the joy, laughter and love you brought to your family and others. You are with your brother now. Bless your soul. Run, play, sing and be free angel Lily!

Related: atrophy, barnett, hoffmans, lily, muscular, sma, spinal, type, werdnig

Spinal Muscular Atrophy - Transportation Spinal Muscular Atrophy - Transportation
Posted by: Shira2

Video duration: 176 seconds

Thank you Giving In Action

Related: atrophy, chair, muscular, sma, spinal, transportation, van, wheel

Spinal Muscular Atrophy - Shira Fisher-A Channel News Spinal Muscular Atrophy - Shira Fisher-A Channel News
Posted by: Shira2

Video duration: 155 seconds

December 2005 Shira's Family Advocates for necessary medical equipment and nursing support to keep their child alive.

Related: 1-spinal, atrophy, muscular, sma, type

Spinal Muscular Atrophy - Shira Fisher News October 05 Spinal Muscular Atrophy - Shira Fisher News October 05
Posted by: Shira2

Video duration: 179 seconds

After finding out our daughter was diagnosed with Spinal Muscular Atrophy Type 1 we had to advocate for the kind of care we wanted for her.

Related: atrophy, in, muscular, news, spinal, the

Spinal Muscular Atrophy-Amino Acid Diet Part 1 of 3 Spinal Muscular Atrophy-Amino Acid Diet Part 1 of 3
Posted by: Shira2

Video duration: 518 seconds

Many people have asked me how I prepare Shira's Amino Acid Diet. Here is an example of what we do. Before starting your child on the diet consult your doctor and read about the diet at www.smasupport.com

Related: acid, amino, atrophy, bach, diet, dr., fisher, invasive, muscular, niv, non, of, protocol, shira, spinal

Spinal Muscular Atrophy - Amino Acid Diet - Part 2 of 3 Spinal Muscular Atrophy - Amino Acid Diet - Part 2 of 3
Posted by: Shira2

Video duration: 141 seconds

Shira's diet follows the guidelines of the AA Diet. There are many variations within the guidelines of the diet. More info on the diet can be found at www.fsma.org and www.smasupport.com and www.asonginthisworld .com

Related: acid, amino, atrophy, bach, diet, dr., fisher, invasive, muscular, niv, non, of, protocol, shira, spinal

Spinal Muscular Atrophy-Amino Acid Diet-Part 3 of 3 Spinal Muscular Atrophy-Amino Acid Diet-Part 3 of 3
Posted by: Shira2

Video duration: 571 seconds

Here is Shira's Amino Acid Diet Being Prepared following the guidelines of the Amino Acid Diet. For more info see www.asonginthisworld .com or www.smasupport.com or www.fsma.org

Related: acid, amino, atrophy, bach, diet, dr., fisher, invasive, muscular, niv, non, of, protocol, shira, spinal

Spinal Muscular Atrophy-Shira Fisher A-Channel News June 06 Spinal Muscular Atrophy-Shira Fisher A-Channel News June 06
Posted by: Shira2

Video duration: 188 seconds

Shira celebrates her first birthday. Shira's family advocates for Shira to get necessary medical equipment.

Related: -spinal, atrophy, muscular, sma, type