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Spinal Muscular Atrophy-CPT Sessiono Part 1 Posted by: Shira2
Video duration: 555 seconds Please consult with your doctor, physio therapist and respiratory therapist to devise a Chest Physio Therapy Routine designed specifically for your child. CPT is administered minimum 2 times and day and increase to every 4 hours during illness Related: 1, atrophy, chest, muscular, physio, sma, spinal, therapy, type |
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Spinal Muscular Atrophy - In Memory of Lily 6th Bday Posted by: Shira2
Video duration: 389 seconds This video is posted today in Memory of Beautiful Princess Lily who died yesterday following a 7 year battle with SMA. We love you Lily! You and your mommy have a special place in our hearts. Related: atrophy, barnett, lily, muscular, sma, spinal |
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Spinal Muscular Atrophy - Shira Sitting Up Posted by: Shira2
Video duration: 284 seconds Shira sitting in Tumble Form Chair with Hensinger Neck brace. The frame around Shira is multi-purpose Related: atrophy, fisher, muscular, shira, sma, spinal |
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Spinal Muscular Atrophy - Mickey Button Change Out Posted by: Shira2
Video duration: 493 seconds Here is a video showing how to remove and replace your childs Mickey Button. Please consult with your physician before trying this at home Related: -, atrophy, button, change, michey, muscular, out, sma-, spinal |
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Spinal Muscular Atrophy- CPT Session Part 2 Cough Assist Posted by: Shira2
Video duration: 206 seconds Shira receiving a cough assist treatment. Please consult your doctor, respiratory therapist and physio therapist to devise the appropriate Chest Physio Session for your child. Shira receives the cough assist treatment 2 times per day and up to every 4 hours if ill. I use the cough assist throughout the day as Shira needs it. The cough assist is our friend! Related: assist, atrophy, chest, cough, cpt, muscular, physio, sma, spinal, therapy |
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Spinal Muscular Atrophy -SMA/In Loving Memory of Lily Posted by: Shira2
Video duration: 236 seconds Lily Barnett lost her fight against Spinal Muscular Atrophy Type 1 on May 12, 2008 just short of her 7th birthday. We will never forget the joy, laughter and love you brought to your family and others. You are with your brother now. Bless your soul. Run, play, sing and be free angel Lily! Related: atrophy, barnett, hoffmans, lily, muscular, sma, spinal, type, werdnig |
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Spinal Muscular Atrophy - Transportation Posted by: Shira2
Video duration: 176 seconds Thank you Giving In Action Related: atrophy, chair, muscular, sma, spinal, transportation, van, wheel |
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Spinal Muscular Atrophy - Shira Fisher-A Channel News Posted by: Shira2
Video duration: 155 seconds December 2005 Shira's Family Advocates for necessary medical equipment and nursing support to keep their child alive. Related: 1-spinal, atrophy, muscular, sma, type |
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Spinal Muscular Atrophy - Shira Fisher News October 05 Posted by: Shira2
Video duration: 179 seconds After finding out our daughter was diagnosed with Spinal Muscular Atrophy Type 1 we had to advocate for the kind of care we wanted for her. Related: atrophy, in, muscular, news, spinal, the |
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Spinal Muscular Atrophy-Amino Acid Diet Part 1 of 3 Posted by: Shira2
Video duration: 518 seconds Many people have asked me how I prepare Shira's Amino Acid Diet. Here is an example of what we do. Before starting your child on the diet consult your doctor and read about the diet at www.smasupport.com Related: acid, amino, atrophy, bach, diet, dr., fisher, invasive, muscular, niv, non, of, protocol, shira, spinal |
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Spinal Muscular Atrophy - Amino Acid Diet - Part 2 of 3 Posted by: Shira2
Video duration: 141 seconds Shira's diet follows the guidelines of the AA Diet. There are many variations within the guidelines of the diet. More info on the diet can be found at www.fsma.org and www.smasupport.com and www.asonginthisworld .com Related: acid, amino, atrophy, bach, diet, dr., fisher, invasive, muscular, niv, non, of, protocol, shira, spinal |
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Spinal Muscular Atrophy-Amino Acid Diet-Part 3 of 3 Posted by: Shira2
Video duration: 571 seconds Here is Shira's Amino Acid Diet Being Prepared following the guidelines of the Amino Acid Diet. For more info see www.asonginthisworld .com or www.smasupport.com or www.fsma.org Related: acid, amino, atrophy, bach, diet, dr., fisher, invasive, muscular, niv, non, of, protocol, shira, spinal |












